Check out this great website by another mum with a child like mine:
www.1q21-1microdeletionsyndrome.weebly.com
Thank you for visiting my blog. These are stories of the unique issues faced by people with learning disabilities and their families, inspired by my experiences of parenting Chrissy, who was diagnosed with the rare chromosome disorder, 1q21.1 microdeletion, in her twenties. If you're wondering if counselling could help you with the challenges that you face in parenting someone with additional needs, contact me: info@janealcockcounselling.co.uk
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HI, my name is DeLona and recently a child was placed in our home who has 1q21.1 microdeletion. From the day I met him I knew there was ?something? about him. He was delayed in many areas, but it was more than that. I have a few questions that I hope you can answer. If you have a few minutes I would love to ask you a couple of questions.
ReplyDeleteThanks so much for sharing your life. DeLona. delonaglenn@gmail.com
Hi DeLona, Sorry, I've only just picked up your comment. (Now sorted out my settings so I get emails when someone comments!). I've dropped you a line. Only to happy to help :-)
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